Karen Gaffney on the Importance of Research

Vibrant and inspirational self-advocate Karen Gaffney spoke at the October 2014 Funding Futures to benefit the LuMind Foundation. Karen spoke about the importance of Down syndrome cognition research and "the huge black cloud" that hangs over her about early onset Alzheimer's disease and loss of cognitive gains that every person with Down syndrome faces as they age.

We Have Big Plans for 2015!

Won't you join us? Ten years ago there was little research on Down syndrome cognitive development being conducted, now there are more promising lines of discovery than we can fund. The LuMind Foundation Board Chair, Ryan Hartman, has a message about why NOW is a critical time to capture the research momentum you've ignited with your donations. Read Ryan's words on our Plus15 Blog.

NIHNIH Releases 2014 Down Syndrome Research Plan

We’re very pleased to announce that NIH has just released the updated document “Down Syndrome Directions,” the NIH Research Plan on Down Syndrome. The research plan will provide another great way to work with the DS community to further research efforts. Read more about the plan on our plus15 Blog.

The ROMP Video is Here!

What happens at a ROMP FOR RESEARCH? Find out in this colorful, fun-filled, camera-drone flying video. We especially enjoyed the cameo by Troy, one of our favorite ROMP participants.


You Moved the Needle!

You pushed the needle on research! We reached our goal of 2390 and doubled our $100/person donation, by adding at least 125 names to the DS-Connect® registry. In the end, 226 people joined DS-Connect® during the month of October, earning LuMind Foundation $45,200 for research. Better yet - the registry tipped 2500 just after the month closed. Keep watch on the DS-Connect® website to see the gauge move even more.

Thank you to everyone who helped by joining the registry and spreading the word. Read our deepest thanks on our plus15 blog post "DS-Connect® Challenge a Huge Success."

For details on the Challenge, read a description on our website or visit the registry to sign up today at DS-Connect®.

Keep the needle moving!

Your Donations at Work: The 2014-2015 LuMind Research Grants are Announced

We've worked together all year for this moment! The Research grants are here!

Thank you to all of our wonderful supporters who made advances in Down syndrome research a reality. Thank you to the members of our Scientific Advisory Board for reviewing all the proposals and making those tough decisions. 

Read more about the areas of research and the wonderful opportunities the programs hold for people of all ages with Down syndrome. Learn more by visiting our Research hub, reading the full press release, or browse a graphic outlining how the results from our funded researchers are flowing through the research pipeline. Great progress - all thanks to you!

About Our New Name


In celebration of our 10th anniversary, we're lighting up the future with a new name, and exciting progress.

Read More About Our New Name


Read Our Press Release


Upcoming Events

February 28, 2015

Glitter and Glue: A Night with New York Times Best Selling Author Kelly Corrigan

Gather up your book club friends and attend a cocktail party with Kelly Corrigan, author of  Glitter and Glue, The Middle Place, and Lift at the St. Charles Country Club in St. Charles, Illinois. Click here for more details and to order tickets.

March 21, 2015

World Down Syndrome Day!

Please join us in celebrating this international day celebrating the lives, accomplishments and inspiration of people with Down syndrome. Once again the LuMind Foundation will be offering a 3:1 match for all donations received during the March 21, 2015 weekend. Watch our web and social sites for more information on our activities.

March 21, 2015,  2:00 pm – 4:00 pm

WDSD Party at the Brooklyn Museum, Brooklyn, NY

LuMind Foundation will be joining Gigi's Playhouse, NDSS, and the Brooklyn Museum in recognizing WDSD with a celebration centered around the work of Judith Scott, and amazing textile artist, who also happened to have Ds. Click here for more information and to register.

March 22, 22, 23, 2015

e321 Conference

Dr. Michael Harpold is participating in the e321 Conference, holding a webinar on " Advances in Down Syndrome Cognition Research - “Seizing the Momentum”- Unprecedented Progress in Translating Biomedical Research Discoveries into New Therapies." Visit the e321 website for more information and to register.

April 11, 2015

DSAGC Health Awareness Day

LuMind Foundation will be attending the Health Awareness Day organized by the Down Syndrome Association of Greater Cincinnati. 

April 16, 2015

Brinks Technology Charity Golf Outing

Hello Texas! Join us in a four-person scramble golf tournament benefiting Down syndrome cognition research. Visit the event site to learn more or sign up for sponsorships. 


View past events >>


In the News

LuMind Foundation Announces 2014-2015 Research Grants

September 10, 2014

National Public Radio Features LuMind-Funded Researchers

NPR, August 25, 2014

Health Beat: Down Syndrome: The Key to Alzheimer's disease?

WFMZ, San Diego - July 18, 2014

"Support Cells" in Brain Play Important Role in Down Syndrome

BioScience Technology - July 18, 2014

In Science of Down Syndrome, Another Piece of the Puzzle

Modern Messy - May 20, 2014

Research News Could Lead to New Lines of Investigation

April 2014

Shoddy Sorting Disrupts Memory-Making Signals

AStar Research - April 23, 2014

Can Down Syndrome Research Also Help Alzheimer's Patients?

Cape Cod Times — March 21, 2014

People With Intellectual Disabilities Get a Say in Drug Trials

Wall Street Journal – March 10, 2014

IQ Boosting Drugs Aim to Help Kids with Down Syndrome Learn

Bloomberg News – March 3, 2014

New Drugs May Transform Down Syndrome

Scientific American – March 1, 2014

LuMind Foundation

225 Cedar Hill Street, Suite 200  Marlborough, MA  01752
Phone: 508.630.2177

LuMind Foundation

225 Cedar Hill Street, Suite 200  Marlborough, MA  01752
Phone: 508.630.2177

© 2015 LuMind Foundation. All Rights Reserved.