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Alexander’s Angels: Supporting Every Person in the World with Down Syndrome
By Veronica Fratta We hear so much about how far a mother will go to help her child, but how about a grandmother?  Well, Esther Gómez-Nieto organized a walk, started an art show, educated college students, started a foundation, and raised hundreds of thousands of dollars—all to support her grandson Alexander and others with Down […]
Monday, March 23, 2015 1:01:22 PM

First Lady Mary Pat Christie Lights the Way for Ds Cognition Research
Thank you New Jersey First Lady Mary Pat Christie for championing the “Light the Way” program! Twenty-nine states and territories to date will be participating in Mrs. Christie’s campaign by showing support for Down syndrome cognition research on March 21, 2015, World Down Syndrome Day. From Governor Christie’s office: First Lady Mary Pat Christie Spearheads “Light the […]
Friday, March 20, 2015 11:08:42 AM

Let’s Do This: Mobilizing the Cognition Research Army
By Maureen Wallace The funny thing is, I’ve always had this unexplainable foreboding that I would develop Alzheimer’s disease. I guess that’s not so funny, is it. The fear lurks in my mind, so much so that I visited a research facility once, thinking I’d be able to learn if I was “predisposed.” Turns out, […]
Thursday, March 19, 2015 9:01:57 AM

My Giving Story: A Foot in Two Worlds – Ds and AD
New developments in the relationship between Alzheimer’s Disease and Down Syndrome are truly exciting, particularly for those of us who have vested interests in both worlds.
Saturday, March 14, 2015 6:06:18 AM

Q&A With Dr. William Mobley
Did you attend our webinar in January and ask a question that wasn’t answered? Dr. William Mobley has the answers! Dr. Mobley from the University of California, San Diego’s Down Syndrome Center for Research and Treatment and Dr. Jamie Edgin from the University of Arizona’s Down Syndrome Research Group spoke at our webinar on January 29, […]
Friday, March 13, 2015 7:14:45 AM

LuMind Foundation and Research Down Syndrome Have Merged
LuMind Foundation and Research Down Syndrome have combined resources and programs. Together, we have contributed nearly $12 million to stimulate cognition research, resulting in the discovery of multiple drug targets and supporting the initiation of four clinical trials. The LuMind Foundation (formerly the Down Syndrome Research and Treatment Foundation – DSRTF) and Research Down Syndrome […]
Tuesday, March 03, 2015 7:19:59 AM

Scientific Advisory Board Meeting – February 2015
The core of the LuMind Foundation’s successful research program is our Scientific Advisory Board (SAB), comprised of the brightest minds in research across disciplines and from around the world. Lead by our Chief Scientific Officer, Dr. Michael Harpold, the SAB met in person in mid-February to guide the organization’s mission to fund the most promising […]
Thursday, February 26, 2015 10:08:51 AM

Dr. Harpold at the NIH Alzheimer’s Disease Research Summit 2015
We appreciate Dr. Michael Harpold for being such a road warrior on behalf of the Down syndrome community. On February 9-10, 2015, Dr. Harpold, LuMind Foundation’s Chief Scientific Officer, attended the biennial NIH Alzheimer’s Disease Research Summit 2015, a major forum for the dynamic development of coordinated Alzheimer’s disease research efforts under the Congressionally-mandated National Alzheimer’s […]
Wednesday, February 18, 2015 2:12:15 PM

Glitter and Glue: NYT Bestselling Author Kelly Corrigan at Down Syndrome Research Fundraising Event
By Nicole Gibbard, Event Organizer, Glitter and Glue, Chicago, February 28, 2015 Last year on Linkedin, one of my favorite authors, Kelly Corrigan, posted a personal challenge to raise $1M for charity as part of her 2015 Glitter and Glue paperback book tour.  I knew immediately she was speaking to me and I couldn’t wait […]
Wednesday, February 04, 2015 2:24:16 PM

Reaffirming our Mission: Down Syndrome Cognition Research
“Neither rain nor snow nor gloom of night …” may belong to the Post Office, but our Board Members braved the cold, snow and ice to focus on our mission and growth measures so we can have an even greater impact on Down syndrome cognition research. On a very snowy Saturday, January 24, 2015, The LuMind […]
Friday, January 30, 2015 10:33:29 AM

Is Ds Research Advancing Alzheimer’s Disease Research – Or is it the Other Way Around?
How are Down syndrome and Alzheimer’s Disease connected? It is an interesting and surprising finding that every person with Down syndrome develops by age 40 the brain pathological changes of people with Alzheimer’s disease. Moreover, most people with Down syndrome in old age – i.e., beyond age 60 – show further cognitive decline. This is […]
Wednesday, January 21, 2015 1:25:01 PM

Dr. Harpold Quoted in Education Week Articles on Down Syndrome Research
LuMind Foundation’s Chief Scientific Officer, Dr. Michael Harpold, was quoted in an article by Education Week on the NIH Down Syndrome Research report. In the article, titled “NIH Resets Study Plans for Down Syndrome,” author Sarah Sparks summarizes the seven-year research plan, including discussing a greater focus on students in educational settings. Dr. Harpold is quoted on the […]
Thursday, January 15, 2015 11:44:02 AM

FAQ: Isn’t Down syndrome too complex to treat?
For many years, scientists believed that Down syndrome was too complex to understand, and they believed that there was no way to reverse or reduce the severity of cognitive impairment. However, via two distinct approaches, over the last decade scientists have made unprecedented progress towards identifying a treatment to ameliorate the cognitive impairment associated with […]
Tuesday, January 06, 2015 12:42:36 PM

DSG Renews Commitment to Ds Cognition Research
We are so happy to announce a $10,000 gift from the Down Syndrome Guild of Greater Kansas City. “DSG is a longtime supporter of the LuMind Foundation as we know funding Down syndrome cognition research could provide our members a better quality of life and the opportunity to achieve their full potential,” explained Amy Allison, Executive […]
Friday, January 02, 2015 6:58:15 AM

Harnessing the Momentum of Down Syndrome Cognition Research
by Ryan Hartman, Chairman,  LuMind Foundation Board of Directors Did you know if we had the funding, we could award $20 million in Down syndrome cognition research grants tomorrow? One of the most interesting things I’ve learned since joining LuMind Foundation is the wealth of possibilities on the horizon. I’m a businessman with a background in […]
Tuesday, December 30, 2014 6:40:48 AM

Take Stock in Year-End Giving: More Than a Tax Deduction
When the stock market does well, it offers an opportunity for people to do good. Thank you to the many people who have contacted us about making generous year-end donations of stock. We are especially touched by the number of grandparents who are supporting their grandchildren with a donation to fund cognition research. It’s easy […]
Monday, December 29, 2014 2:00:55 PM

Gift Honors Dr. Michael Harpold
Everyone who meets Dr. Michael Harpold, LuMind Foundation’s Chief Scientific Officer, immediately understands his dedication to Down syndrome cognition research and the Ds community. One family of supporters, Suzanne and Carl Shepherd, are recognizing that dedication with a $15,000 gift to the foundation in honor of Dr. Harpold. The gift will support specific endeavors to ignite research […]
Monday, December 29, 2014 12:37:59 PM

A Research Story: Fragile X
On National Public Radio, there was a story about a foundation started by concerned parents, funding impressive discoveries, results of clinical trials, and the quest for new avenues of research. Nope, not the LuMind Foundation (or even our former name Down Syndrome Research and Treatment Foundation). This is a story about fragile X. The NPR piece, ‘A Family’s […]
Monday, December 22, 2014 2:08:35 PM

The ABLE Act passes! We are so happy to join in the celebration of the passing of the ABLE Act. After passing house and the senate, President Obama signed the ABLE Act into law on Friday. Thank you to all the people who worked tirelessly to pass the Achieving a Better Life Experience (ABLE) Act, including the […]
Sunday, December 21, 2014 5:11:21 PM

DSAGSL Offers a Challenge
We are so excited to report a $10,000 donation from the Down Syndrome Association of Greater St. Louis (DSAGSL). The DSAGSL made the pledge during our Annual Appeal/Giving Tuesday – doubling their impact for cognition research! Thank you DSAGSL! According to DSASL Executive Director Jeremie Ballinger, “DSAGSL’s families have long been interested in research – especially in […]
Friday, December 19, 2014 6:50:56 AM

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