A blog demystifying Down syndrome cognition research

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Scientific Advisory Board
The core of the LuMind Foundation’s successful research program is our Scientific Advisory Board (SAB), comprised of the brightest minds in research across disciplines and from around the world. Lead by our Chief Scientific Officer, Dr. Michael Harpold, the SAB met in person in mid-February to guide the organization’s mission to fund the most promising […]
Thursday, February 26, 2015 10:08:51 AM

Dr. Harpold at the NIH Alzheimer’s Disease Research Summit 2015
We appreciate Dr. Michael Harpold for being such a road warrior on behalf of the Down syndrome community. On February 9-10, 2015, Dr. Harpold, LuMind Foundation’s Chief Scientific Officer, attended the biennial NIH Alzheimer’s Disease Research Summit 2015, a major forum for the dynamic development of coordinated Alzheimer’s disease research efforts under the Congressionally-mandated National Alzheimer’s […]
Wednesday, February 18, 2015 2:12:15 PM

Glitter and Glue: NYT Bestselling Author Kelly Corrigan at Down Syndrome Research Fundraising Event
By Nicole Gibbard, Event Organizer, Glitter and Glue, Chicago, February 28, 2015 Last year on Linkedin, one of my favorite authors, Kelly Corrigan, posted a personal challenge to raise $1M for charity as part of her 2015 Glitter and Glue paperback book tour.  I knew immediately she was speaking to me and I couldn’t wait […]
Wednesday, February 04, 2015 2:24:16 PM

Reaffirming our Mission: Down Syndrome Cognition Research
“Neither rain nor snow nor gloom of night …” may belong to the Post Office, but our Board Members braved the cold, snow and ice to focus on our mission and growth measures so we can have an even greater impact on Down syndrome cognition research. On a very snowy Saturday, January 24, 2015, The LuMind […]
Friday, January 30, 2015 10:33:29 AM

Is Ds Research Advancing Alzheimer’s Disease Research – Or is it the Other Way Around?
How are Down syndrome and Alzheimer’s Disease connected? It is an interesting and surprising finding that every person with Down syndrome develops by age 40 the brain pathological changes of people with Alzheimer’s disease. Moreover, most people with Down syndrome in old age – i.e., beyond age 60 – show further cognitive decline. This is […]
Wednesday, January 21, 2015 1:25:01 PM

Dr. Harpold Quoted in Education Week Articles on Down Syndrome Research
LuMind Foundation’s Chief Scientific Officer, Dr. Michael Harpold, was quoted in an article by Education Week on the NIH Down Syndrome Research report. In the article, titled “NIH Resets Study Plans for Down Syndrome,” author Sarah Sparks summarizes the seven-year research plan, including discussing a greater focus on students in educational settings. Dr. Harpold is quoted on the […]
Thursday, January 15, 2015 11:44:02 AM

FAQ: Isn’t Down syndrome too complex to treat?
For many years, scientists believed that Down syndrome was too complex to understand, and they believed that there was no way to reverse or reduce the severity of cognitive impairment. However, via two distinct approaches, over the last decade scientists have made unprecedented progress towards identifying a treatment to ameliorate the cognitive impairment associated with […]
Tuesday, January 06, 2015 12:42:36 PM

DSG Renews Commitment to Ds Cognition Research
We are so happy to announce a $10,000 gift from the Down Syndrome Guild of Greater Kansas City. “DSG is a longtime supporter of the LuMind Foundation as we know funding Down syndrome cognition research could provide our members a better quality of life and the opportunity to achieve their full potential,” explained Amy Allison, Executive […]
Friday, January 02, 2015 6:58:15 AM

Harnessing the Momentum of Down Syndrome Cognition Research
by Ryan Hartman, Chairman,  LuMind Foundation Board of Directors Did you know if we had the funding, we could award $20 million in Down syndrome cognition research grants tomorrow? One of the most interesting things I’ve learned since joining LuMind Foundation is the wealth of possibilities on the horizon. I’m a businessman with a background in […]
Tuesday, December 30, 2014 6:40:48 AM

Take Stock in Year-End Giving: More Than a Tax Deduction
When the stock market does well, it offers an opportunity for people to do good. Thank you to the many people who have contacted us about making generous year-end donations of stock. We are especially touched by the number of grandparents who are supporting their grandchildren with a donation to fund cognition research. It’s easy […]
Monday, December 29, 2014 2:00:55 PM

Gift Honors Dr. Michael Harpold
Everyone who meets Dr. Michael Harpold, LuMind Foundation’s Chief Scientific Officer, immediately understands his dedication to Down syndrome cognition research and the Ds community. One family of supporters, Suzanne and Carl Shepherd, are recognizing that dedication with a $15,000 gift to the foundation in honor of Dr. Harpold. The gift will support specific endeavors to ignite research […]
Monday, December 29, 2014 12:37:59 PM

A Research Story: Fragile X
On National Public Radio, there was a story about a foundation started by concerned parents, funding impressive discoveries, results of clinical trials, and the quest for new avenues of research. Nope, not the LuMind Foundation (or even our former name Down Syndrome Research and Treatment Foundation). This is a story about fragile X. The NPR piece, ‘A Family’s […]
Monday, December 22, 2014 2:08:35 PM

RemarkABLE!
The ABLE Act passes! We are so happy to join in the celebration of the passing of the ABLE Act. After passing house and the senate, President Obama signed the ABLE Act into law on Friday. Thank you to all the people who worked tirelessly to pass the Achieving a Better Life Experience (ABLE) Act, including the […]
Sunday, December 21, 2014 5:11:21 PM

DSAGSL Offers a Challenge
We are so excited to report a $10,000 donation from the Down Syndrome Association of Greater St. Louis (DSAGSL). The DSAGSL made the pledge during our Annual Appeal/Giving Tuesday – doubling their impact for cognition research! Thank you DSAGSL! According to DSASL Executive Director Jeremie Ballinger, “DSAGSL’s families have long been interested in research – especially in […]
Friday, December 19, 2014 6:50:56 AM

LuMind in the News: Foundation strives to enhance lives of people living with Down syndrome and Alzheimer’s
Thank you Mary Pritchard, a reporter with the Community Advocate. Mary heard about our Race for Research Road Rally from last June and was interested to learn more about our organization. Thank you Mary for taking such time and care in writing the article. Read the full article.Filed under: Blog, Ds / Alzheimer's Connection, LuMind […]
Saturday, December 13, 2014 7:09:06 AM

Stretch Those Donation Dollars
We are often asked about programs that let our supporters do more with their donation. Here are some ways to have a greater impact on Down syndrome cognition research. Take advantage of our 1:1 match for gifts of $1000 or more during our Annual Appeal – We know it can be a stretch to reach $1000, but […]
Thursday, December 11, 2014 1:59:10 PM

Research Update at Stanford
The LuMind Foundation returned to its Bay Area roots on November 2, 2014 with a well-attended research presentation at Stanford University.  More than sixty people filled the room to listen to Drs. Craig Heller and  Ahmad Salehi discuss new developments and achievements in their research. Jim White, one of the founders of what was then […]
Tuesday, December 09, 2014 11:55:01 AM

One eXtra Reason to Live.., Love… Hope
Thank you to the amazing folks who came out for a night fun in Southern California on November 1. LuMind Foundation was founded in California and since then we’ve expanded our footprint to reflect that people with Down syndrome around the world can benefit from cognition research. We were happy to get back to our roots with […]
Friday, December 05, 2014 8:55:38 AM

#WowWednesday
We’re not sure how widespread #WowWednesday is as a hashtag trend, but it reflects how we feel after the response on #GivingTuesday. THANK YOU! This was our first push on Giving Tuesday and we weren’t sure what to expect. December 2 fell during our Annual Appeal, so we asked for your help in sharing our message, then […]
Wednesday, December 03, 2014 7:33:23 AM

Give With Your Head As Well As Your Heart
Many people who support our foundation have a loved one with Down syndrome, so you may think their commitment to supporting cognition research is solely an emotional decision. But making a donation to LuMind Foundation is a smart investment, too. In just ten years, LuMind Foundation has achieved unprecedented results – identifying nine drug targets and leading to four clinical […]
Monday, December 01, 2014 8:47:21 AM

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