In the Winner's Circle: A Look at the Race for Research
We raised more than $100,000 for Down syndrome cognition research!
For pictures, stories and memories, check out our Facebook Page, where we posted updates throughout the three-day Road Rally.
Thank you to NASCAR for covering LuMind's race for Research Road Rally as we crossed the finish line at the NASCAR Hall of Fame in Charlotte, NC. Check out the video and hear from our teams and honorary co-chair, David Ragan on why they raced for research.
Clinical Trials UPDATE: Roche Initiates RG1662 Phase II Clinical Trials for Individuals with Down syndrome
LuMind Foundation-supported research has led to clinical trials currently in progress to address developmental cognitive deficits and those impairments associated with Alzheimer’s disease. Learn more about the Phase II Roche clinical trial and other clinical trials.
Illuminating Cognition Research "With Glow Sticks and Energy"
We recently received a message from Katie Cloutier, a junior at Black River High School in Ludlow, Vermont. Katie (on the right in the photo) held a fun-run fundraising event to support LuMind Foundation and raised almost $600 to support cognition development research. Katie, who is a distance runner, has a friend with Down syndrome and was inspired to create an event that honored her friend and her love of running.
"I chose to donate to your foundation because a close friend of mine has Down Syndrome. In my leisure time I enjoy running and have been a member of my school’s cross-country running team, so the event that I organized incorporated each of these interests, with the benefit of raising funds for beneficial research!" she explained. "I decided to host a Glow-in-the-Dark 5K run/walk on May 10th. Members of the community and people from the surrounding area came to enjoy a night run, and we lit up the village with glow sticks and energy!"
Thank you, Katie - you make us glow with happiness!
Want to Learn More about the Race for Research?
Take the word of our honorary co-chair! NASCAR Driver David Ragan, who is co-chairing the event with his wife Jacquelyn, was on the John Boy and Billy Radio Show talking about the inaugural Race for Research to benefit LuMind Foundation. Listen in!
Ds Research Questions: Asked by a Parent, Answered by Experts
Like many parents, Victoria Vila, a freelance writer and member of the Down Syndrome Association of Greater Charlotte, had questions about research and studies on Ds. To answer those questions, she turned to LuMind's Chief Scientific Officer Dr. Michael Harpold and Campbell Brasington, a certified genetic counselor at the Down Syndrome clinic at Levine Children’s Hospital. Then Victoria captured the answers in her blog, so she could share what she learned.
Ryan Hartman Voted in as Vice Chairman of LuMind Foundation
LuMind Foundation is pleased to have Ryan Hartman accept the responsibility as Vice Chairman of LuMind Foundation. We are so pleased to have Ryan's continued input and guidance with the organization.
"Like many families of children with Down syndrome, soon after our son Taylor was born, my wife and I found ourselves searching for answers on how to provide Taylor the opportunity to achieve his best. Our search for answers lead us to LuMind Foundation," explained Ryan. "We immediately recognized the difference LuMind Foundation endeavors to make for people living with Down syndrome. I'm so very humbled and proud to be a part of a team focused on providing Taylor and others living with Down syndrome the opportunity to live a more active and independent life."
Please join us in welcoming Ryan to his new position with the foundation.
Did you miss our webinar "Down Syndrome Cognition Research: Memory and Sleep?"
In this special Mother's Day presentation, Dr. Jamie Edgin provided an update on the current state of work on memory formation and sleep-dependent learning in children and young adults with Down syndrome. She also highlighted other recent discoveries and new directions in her lab, including progress on the development of new cognitive assessments for young children with Down syndrome (the Arizona Memory Assessment for Preschoolers and Special Populations™, or A-MAP). Learn more and watch a replay.
For a person with Down syndrome, quality of life equals independence and inclusion.
LuMind Foundation is dedicated to making this a reality for the hundreds of thousands affected by finding treatments to improve cognition including learning, memory and speech for people with Down syndrome. We are the leading private source of funding in the United States for Down syndrome cognition research. Read about our results.
We operate under the conviction that anything is possible when innovation, creativity, and motivation are applied toward an imperative end result. And for us that result will be a better quality of life for the over 250,000 people with Down syndrome through improved memory, learning, and speech. This isn’t just a distant dream — it’s a near-term reality. Through the funding we provide to the institutions and talent that are pushing the boundaries of cognition research, a more welcoming world lies ahead for people with Down syndrome. We are honored to be opening the door.
Our New Video
Hear what our researchers have to say in celebration of World Down Syndrome Day!
The Connection between Ds and Alzheimer’s Disease
All adults with Down syndrome over 35-40 years of age develop the characteristic Alzheimer’s neuropathology, including the formation of beta-amyloid plaques, with earlier onset of dementia developing in more than 70% of individuals. More…
LuMind Foundation 2013-2014 Grant Awards Exceed $1M
LuMind Foundation has provided over $9.6 million to advance Down syndrome cognition research. Recipients of this year's funding include researchers at Johns Hopkins Medicine; the University of California, San Diego; the University of Arizona; Stanford University; and the VA Palo Alto Health Care System. More…
DS Connect: Down Syndrome Registry Aims to Connect Families and Individuals with Ds to Researchers
DS Connect is a secure centralized information clearinghouse funded and launched by NIH. It is a resource for communication among families, researchers, clinicians, and patient groups, and will be an essential tool in supporting new clinical studies and trials to benefit people with Ds. To learn more about the registry, download DS-Connect’s informational flyer or visit DS-Connect now.