Thank you - You did it!
You pushed the needle on research! We reached our goal of 2390 and doubled our $100/person donation, by adding 125 names to the DS-Connect® registry.
But the donation amount still increases even after we hit our goal. Instead of $100/person, now LuMind will receive $200/registrant during the month of October. So please consider signing up if you haven't already. Keep watch on the DS-Connect® website to track the real-time gauge.
Learn more about the challenge on our website or visit the registry directly by going to DS-Connect®.
Goal: 2390 registrants to double the donation
Have: 2391 (Oct. 16)
Need: WE MET OUR GOAL! But we still get a donation for every person who registers, so join up if you haven't already.
The needle on research is moving - thanks to you!
The LuMind Foundation founders are committed to opening doors for people with Down syndrome. They established the LuMind Foundation in 2004 to identify and fund the most promising lines of cognitive development research.
But PhD’s are only part of the research equation. Time in the laboratory is only part of developing effective and safe therapies to improve speech, memory and learning. Breakthroughs can’t happen without the support of the Down syndrome community. One way to connect research with the community is through DS-Connect®.
To celebrate Down Syndrome Awareness Month, our co-founders have offered a challenge. For every person who registers with DS-Connect® during the month of October, they will donate $100 to LuMind Foundation. They've also offered an additional challenge if more than 125 join!
LuMind Foundation's Chief Scientific Officer Dr. Michael Harpold Announced as Chair, DS-Connect® Governance Board
Join us in congratulating Dr. Harpold as he leads the Board overseeing DS-Connect® as the registry moves into its second year.
“Dr. Harpold is a recognized leader in the Down syndrome research community,” said LuMind Foundation Executive Director Carolyn Cronin. “His experience, expertise and willingness to collaborate and connect with researchers, individuals with Down syndrome and families with a loved one with Down syndrome are all valuable assets to our organization and the greater Down syndrome community.” Read more on our Plus15 Blog.
Your Donations at Work: The 2014-2015 LuMind Research Grants are Announced
We've worked together all year for this moment! The Research grants are here!
Thank you to all of our wonderful supporters who made advances in Down syndrome research a reality. Thank you to the members of our Scientific Advisory Board for reviewing all the proposals and making those tough decisions.
Read more about the areas of research and the wonderful opportunities the programs hold for people of all ages with Down syndrome. Learn more by visiting our Research hub, reading the full press release, or browse a graphic outlining how the results from our funded researchers are flowing through the research pipeline. Great progress - all thanks to you!
NYT: The Truth About Down Syndrome
Two LuMind-funded researchers, Jamie Edgin and Fabian Fernandez, respond to remarks by biologist Richard Dawkins with a fact-filled Op-Ed in the New York Times on August 28, 2014.
Here are some of the facts they present:
- Children and young adults with Down syndrome have significantly higher “adaptive” skills
- Recent research suggests that the cognitive impairment that is a hallmark of Down syndrome might eventually be managed by medical interventions
- Medical interventions to address the higher rate of sleep apnea and its impact on cognitive function in individuals with Down syndrome has the potential to improve developmental outcomes over the course of an individual’s life span
- With the near universal earlier development of Alzheimer's disease in individuals with Down syndrome, recent and ongoing research progress underscores the hope of providing preventive treatments in those with Down syndrome, and that could benefit everyone
Explore the full statistics and other facts in the full Op-Ed - and join in the happiness.
Shon Christy Joins LuMind Foundation As Newest Board Member
Shon Christy has been with LuMind Foundation as an active committee member and the Foundation is pleased he accepted a leadership role in the organization. Christy and his wife Brittany are parents to five beautiful children, including an wonderful, playful son named Beckett who has Down syndrome. Welcome Shon! Read more...
UCSD Study Unraveling the Complexities between Down Syndrome and Alzheimer's Disease
Our friends at University of California, San Diego are helping to unravel the complexities of Down syndrome and Alzheimer's disease. A news report from WFMZ in San Diego refers to a three-year pilot project involving a relatively small set of individuals with Down syndrome, like the impressive Jonathan Shirley.
Dr. Mike Rafii, the principal investigator on this pilot Down Syndrome Biomarker Initiative (DSBI) and his research colleagues at UCSD, are investigating the similarities between the brains of aging people with Down syndrome and those with Alzheimer's disease, both developing buildup of characteristic amyloid plaques. Individuals with Down syndrome develop these amyloid plaques earlier by the age of 40.
LuMind Foundation's Chief Scientific Officer, Dr. Michael Harpold, is a member of the DSBI steering committee and is collaborating with Dr. Rafii and others on developing a larger private-public partnership DSBI study. That program is currently in the planning and development stage. To see the news segment in full and watch a video of Jonathan Shirley, please click here.