LuMind Foundation Receives a $500,000 Gift
Thank you to a very generous and anonymous donor who believes in Down syndrome cognition research. Read more on our blog.
NYT: The Truth About Down Syndrome
Two LuMind-funded researchers, Jamie Edgin and Fabian Fernandez, respond to remarks by biologist Richard Dawkins with a fact-filled Op-Ed in the New York Times on August 28, 2014.
Here are some of the facts they present:
- Children and young adults with Down syndrome have significantly higher “adaptive” skills
- Recent research suggests that the cognitive impairment that is a hallmark of Down syndrome might eventually be managed by medical interventions
- Medical interventions to address the higher rate of sleep apnea and its impact on cognitive function in individuals with Down syndrome has the potential to improve developmental outcomes over the course of an individual’s life span
- With the near universal earlier development of Alzheimer's disease in individuals with Down syndrome, recent and ongoing research progress underscores the hope of providing preventive treatments in those with Down syndrome, and that could benefit everyone
Explore the full statistics and other facts in the full Op-Ed - and join in the happiness.
National Public Radio Features LuMind-Funded Researchers
Thank you supporters - read how your donations are doing great work at the University of California San Diego.
In a piece titled "People with Down Syndrome are Pioneers in Alzheimer's Research" Drs. Raffi and Mobley are interviewed, along with 39 year old Justin McGowan who has Ds about the research they are conducting on connections between the Down syndrome community and Alzheimer's disease.
Thank you, pioneers!
Shon Christy Joins LuMind Foundation As Newest Board Member
Shon Christy has been with LuMind Foundation as an active committee member and the Foundation is pleased he accepted a leadership role in the organization. Christy and his wife Brittany are parents to five beautiful children, including an wonderful, playful son named Beckett who has Down syndrome. Welcome Shon! Read more...
The DeNoble Family Foundation Pledges $100,000 to Support Down Syndrome Cognition Research
With sincere gratitude, we announce a generous $100,000 pledge from The DeNoble Family Foundation. We appreciate their support of our mission to fund Down syndrome cognition research through LuMind Foundation.
It takes all types of support to keep the cognitive development research breakthroughs moving through the investigation pipeline. Large grants from philanthropic organizations help us take leaps, but every donation helps with those very important small steps. Thank you to all our supporters!
LuMind Vice Chairman Ryan Hartman Named President and CEO of Insitu
Ryan Hartman, LuMind Foundation's incoming Board Chairman, has been named as president and CEO of Insitu, a Boeing company. In the announcement of his new position, Boeing acknowledged Hartman's track record of advancing research and engineering, coupled with strong management skills. We are so happy to have those skills be part of the LuMind Foundation Board of Directors. You can read more about Ryan's new role with Insitu/Boeing, on the company website.
Congratulations, Ryan - and we're glad to have you on our team!
UCSD Study Unraveling the Complexities between Down Syndrome and Alzheimer's Disease
Our friends at University of California, San Diego are helping to unravel the complexities of Down syndrome and Alzheimer's disease. A news report from WFMZ in San Diego refers to a three-year pilot project involving a relatively small set of individuals with Down syndrome, like the impressive Jonathan Shirley.
Dr. Mike Rafii, the principal investigator on this pilot Down Syndrome Biomarker Initiative (DSBI) and his research colleagues at UCSD, are investigating the similarities between the brains of aging people with Down syndrome and those with Alzheimer's disease, both developing buildup of characteristic amyloid plaques. Individuals with Down syndrome develop these amyloid plaques earlier by the age of 40.
LuMind Foundation's Chief Scientific Officer, Dr. Michael Harpold, is a member of the DSBI steering committee and is collaborating with Dr. Rafii and others on developing a larger private-public partnership DSBI study. That program is currently in the planning and development stage. To see the news segment in full and watch a video of Jonathan Shirley, please click here.
Making Connections: Down Syndrome Cognition Research and Alzheimer's Disease
Want to learn more about the connections research is discovering between Down syndrome and Alzheimer's disease? Read how LuMind funded researchers are investigating early onset Alzheimer's disease in people with Down syndrome and how that research may benefit the greater Alzheimer's community. Learn more.