Thank you - You did it! 

You pushed the needle on research! We reached our goal of 2390 and doubled our $100/person donation, by adding 125 names to the DS-Connect® registry.

But the donation amount still increases even after we hit our goal. Instead of $100/person, now LuMind will receive $200/registrant during the month of October. So please consider signing up if you haven't already. Keep watch on the DS-Connect® website to track the real-time gauge. 

Learn more about the challenge on our website or visit the registry directly by going to DS-Connect®.


Goal: 2390 registrants to double the donation

Have: 2391 (Oct. 16) 

Need: WE MET OUR GOAL! But we still get a donation for every person who registers, so join up if you haven't already. 

The needle on research is moving - thanks to you!

The LuMind Foundation founders are committed to opening doors for people with Down syndrome. They established the LuMind Foundation in 2004 to identify and fund the most promising lines of cognitive development research. 

But PhD’s are only part of the research equation. Time in the laboratory is only part of developing effective and safe therapies to improve speech, memory and learning. Breakthroughs can’t happen without the support of the Down syndrome community. One way to connect research with the community is through DS-Connect®.

To celebrate Down Syndrome Awareness Month, our co-founders have offered a challenge. For every person who registers with DS-Connect® during the month of October, they will donate $100 to LuMind Foundation. They've also offered an additional challenge if more than 125 join!

Learn more.

LuMind Foundation's Chief Scientific Officer Dr. Michael Harpold Announced as Chair, DS-Connect® Governance Board

Join us in congratulating Dr. Harpold as he leads the Board overseeing DS-Connect® as the registry moves into its second year.

“Dr. Harpold is a recognized leader in the Down syndrome research community,” said LuMind Foundation Executive Director Carolyn Cronin. “His experience, expertise and willingness to collaborate and connect with researchers, individuals with Down syndrome and families with a loved one with Down syndrome are all valuable assets to our organization and the greater Down syndrome community.” Read more on our Plus15 Blog.

Your Donations at Work: The 2014-2015 LuMind Research Grants are Announced

We've worked together all year for this moment! The Research grants are here!

Thank you to all of our wonderful supporters who made advances in Down syndrome research a reality. Thank you to the members of our Scientific Advisory Board for reviewing all the proposals and making those tough decisions. 

Read more about the areas of research and the wonderful opportunities the programs hold for people of all ages with Down syndrome. Learn more by visiting our Research hub, reading the full press release, or browse a graphic outlining how the results from our funded researchers are flowing through the research pipeline. Great progress - all thanks to you!

NYT: The Truth About Down Syndrome

Two LuMind-funded researchers, Jamie Edgin and Fabian Fernandez,  respond to remarks by biologist Richard Dawkins with a fact-filled Op-Ed in the New York Times on August 28, 2014.

Here are some of the facts they present:

  • Children and young adults with Down syndrome have significantly higher “adaptive” skills
  • Recent research suggests that the cognitive impairment that is a hallmark of Down syndrome might eventually be managed by medical interventions
  • Medical interventions to address the higher rate of sleep apnea and its impact on cognitive function in individuals with Down syndrome has the potential to improve developmental outcomes over the course of an individual’s life span
  • With the near universal earlier development of Alzheimer's disease in individuals with Down syndrome, recent and ongoing research progress underscores the hope of providing preventive treatments in those with Down syndrome, and that could benefit everyone

Explore the full statistics and other facts in the full Op-Ed - and join in the happiness. 


Shon Christy Joins LuMind Foundation As Newest Board Member

Shon Christy

Shon Christy has been with LuMind Foundation as an active committee member and the Foundation is pleased he accepted a leadership role in the organization.  Christy and his wife Brittany are parents to five beautiful children, including an wonderful, playful son named Beckett who has Down syndrome. Welcome Shon!   Read more...

UCSD Study Unraveling the Complexities between Down Syndrome and Alzheimer's Disease

Our friends at University of California, San Diego are helping to unravel the complexities of Down syndrome and Alzheimer's disease. A news report from WFMZ in San Diego refers to a three-year pilot project involving a relatively small set of individuals with Down syndrome, like the impressive Jonathan Shirley.

Dr. Mike Rafii, the principal investigator on this pilot Down Syndrome Biomarker Initiative (DSBI) and his research colleagues at UCSD, are investigating the similarities between the brains of aging people with Down syndrome and those with Alzheimer's disease, both developing buildup of characteristic amyloid plaques. Individuals with Down syndrome develop these amyloid plaques earlier by the age of 40.

LuMind Foundation's Chief Scientific Officer, Dr. Michael Harpold, is a member of the DSBI steering committee and is collaborating with Dr. Rafii and others on developing a larger private-public partnership DSBI study. That program is currently in the planning and development stage. To see the news segment in full and watch a video of Jonathan Shirley, please click here.



About Our New Name


In celebration of our 10th anniversary, we're lighting up the future with a new name, and exciting progress.

Read More About Our New Name


Read Our Press Release


In the News

LuMind Foundation Announces 2014-2015 Research Grants

September 10, 2014

National Public Radio Features LuMind-Funded Researchers

NPR, August 25, 2014

Health Beat: Down Syndrome: The Key to Alzheimer's disease?

WFMZ, San Diego - July 18, 2014

"Support Cells" in Brain Play Important Role in Down Syndrome

BioScience Technology - July 18, 2014

In Science of Down Syndrome, Another Piece of the Puzzle

Modern Messy - May 20, 2014

Research News Could Lead to New Lines of Investigation

April 2014

Shoddy Sorting Disrupts Memory-Making Signals

AStar Research - April 23, 2014

Can Down Syndrome Research Also Help Alzheimer's Patients?

Cape Cod Times — March 21, 2014

People With Intellectual Disabilities Get a Say in Drug Trials

Wall Street Journal – March 10, 2014

IQ Boosting Drugs Aim to Help Kids with Down Syndrome Learn

Bloomberg News – March 3, 2014

New Drugs May Transform Down Syndrome

Scientific American – March 1, 2014

Upcoming Events

October 10, 2014

Ashley Rose Golf Classic

Enjoy a beautiful fall day playing golf in the foothills of Bull Run Mountain in Haymarket, Virginia. This is the fourth annual golf outing to support LuMind Foundation and we are so happy to have everyone involved on our team. Check out the course, named the best public course in the DC area: Bull Run Country Club. Click here for registration details.

October 11, 2014

Alexander's Angels 8th Annual Buddy Walk

Representatives of LuMind Foundation will be at this wonderful seaside Buddy Walk at Tanner Park in Copiague, New York from 10:30 a.m. to 3:00 p.m. Come say hello! Learn more and directions.

October 12, 2014

NY Romp for Research

It's been 10 years since the LuMind Foundation opened its doors as the Down Syndrome Research & Treatment Foundation, and we're inviting our friends and colleagues to join us in celebrating this milestone during the 9th Annual New York Romp for Research that will be held on Sunday, October 12, 2014, at Asphalt Green in New York City. Since its founding in 2004 as DSRTF, LuMind has become the leading private source of funding in the US, generating more than $9.6 million to support results-driven research to improve cognition for people with Down syndrome. Be sure to save the date — and please let us know if you're interested in joining the volunteer committee, supporting the event through sponsorship, or joining us for a day of celebration. 

October 15, 2014, 4:00 PM EST

Free Webinar: The Role of Research for a Person with DS: Results, Updates, and a Look Ahead

  • A Decade of Discoveries and a Cognition Research Update - Dr. Michael Harpold, LuMind Foundation Chief Scientific Officer
  • Connecting the DS Community with Researchers – Dr. Melissa Parisi, National Institutes of Health (NIH)/NICHD, DS-Connect® 
  • A Community Collaborating to Promote Research - Diana Merzweiler, Executive Director, Down Syndrome Louisville
  • Q&A

Register here.

October 18, 2014

3rd Annual Funding for Futures, Chicago

Save the date and join us alongside the Chicago river in October at Lizzie McNeill's as Chicago turns out to support LuMind Foundation. Check out more at:

November 1, 2014

One Extra Reason to Live, Love, and Hope

Save the date and join us for the ninth annual SoCal benefit for LuMind! Click here for more information.

View past events >>


LuMind Foundation

225 Cedar Hill Street, Suite 200  Marlborough, MA  01752
Phone: 508.630.2177

LuMind Foundation

225 Cedar Hill Street, Suite 200  Marlborough, MA  01752
Phone: 508.630.2177

© 2014 LuMind Foundation. All Rights Reserved.